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Wed, 19 Jun

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View on AMRF's website - RSVP for link

Curious how a single brain donation is set to change disease diagnosis?

Are you curious about how one brain donation led to better understanding of one family's genetic disorder leading to dementia? Join us for this NZ Frontotemporal Dementia research update.

Curious how a single brain donation is set to change disease diagnosis?
Curious how a single brain donation is set to change disease diagnosis?

Time & Location

19 Jun 2024, 7:00 pm – 7:30 pm NZST

View on AMRF's website - RSVP for link

About the Event

Are you curious to know how a single brain donation is set to change disease diagnosis?

In 2006, a woman passed away and her brain was donated to the New Zealand Neurological Foundation Human Brain Bank.

Subsequent genetic testing revealed that the woman carried a dementia-causing gene mutation. The woman’s family asked if they could become involved in the world-leading brain research that followed. Since 2016, researchers have been working with this family, who have a 50/50 chance of developing dementia.

Curious to know more about what researchers have found, and its implications for earlier diagnosis of the disease?

The Foundation provides funding to world-class medical researchers who are making a life-changing difference.

This update builds on AMRF-supported research from Dr Brigid Ryan, a mid-career scientist leading research that is showing promising results for critical earlier detection and treament for dementia and who is curious: Can dementia be detected in this family, before symptoms are evident?

Are you curious about how one brain donation from a family with a genetic disorder is leading to early detection and interventions for dementia?  Sign up now to join us for the update. Check your spam/junk mail for the confirmation email and ensure your settings allow future messages from us, so you don't miss the video link!

Want to know more? Check out the history of Dr Ryan's work and how far they have come.

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